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  • “White Petals Surround Your Yellow Heart” at Institute of Contemporary Art


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    Artist:  Hilton Als, Lynda Benglis, Bernadette Corporation, Genesis Breyer P-Orridge, Dexter Sinister with Halmos, Leif Elggren, Anne-Mie Van Kerckhoven, Karen Kilimnik, Irena Knezevic, Inez van Lamsweerde & Vinoodh Matadin, Erin Leland, Zoe Leonard, Wardell Milan, Paulina Olowska, Seth Price, Rammellzee, Nick ...
    1 week ago
  • Cancer Drug Prevents Build-up of Toxic Brain Protein


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    Using a tiny dose of the leukemia drug nilotinib, researchers halt the accumulation of toxic proteins linked to Parkinsons diseases in the brains of mice.
    1 week ago
  • Join the ALS Registry During ALS Awareness Month


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    Its been over two years since the National ALS Registry opened through the Centers for Disease Control & Prevention. The federal government continues to make major strides in the Registry, updating questions on the various surveys and informing those with ALS about the tremendous usefulness of this tool. As the ...
    1 week ago
  • HOT DOCS 2013: Is This A New Golden Age?


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    Maybe there’s a debate going on about whether we are, in fact, in the midst of a “documentary renaissance,” but the answer seemed self-evident at the 20th annual Hot Docs, that sprawling all-nonfiction festival that serves as a deliberately inclusive snapshot of current documentary culture. Among the many, many ...
    1 week ago
  • Young Professionals Group Networking to Defeat ALS


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    The Greater New York Chapter’s Young Professionals Group hosted their first Networking Happy Hour event on April 23rd at The Ainsworth Lounge in Manhattan. An energetic crowd of nearly 50 young professionals from various career backgrounds attended, all with a mission to defeat ALS. This was a great event ...
    1 week ago
  • Who Cares?


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    One of our best selling patient care manikins is featured at the "Who Cares?" exhibition currently being held at the Museum der Arbeit (Museum of Work) in Hamburg, Germany. "Who Cares" is a work devised by the historian Isabel Atzl who also has 10 years of experience of working in hospitals as a Nurse.  The ...
    1 week ago
  • Florida: Lou Gehrig’s Disease Patient Sues for Cannabis Protection


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    Longtime Florida activist Cathy Jordan , a 63-year-old woman who consumes cannabis to mitigate symptoms of amyotrophic lateral sclerosis (ALS aka Lou Gehrig’s disease), a debilitating condition that she has lived with since 1986, today filed a suit against Sheriff Brad Steube of Manatee County, FL. Ms. Jordan ...
    1 week ago
  • 2013 Ask the Experts ALS Research Symposium


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    On April 14th, our Chapter hosted an "Ask the Experts" ALS Research Symposium at the beautiful campus of Cold Spring Harbor Laboratory on Long Island. We were happy to welcome 16 PALS, over 50 more friends and family members, as well as Research Council members to this informative afternoon focused on the latest in ...
    1 week ago
  • ALS Progression Rate Predicted by New Protein Test


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    A new protein test may help identify patients with amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease), who are most at risk for rapid progression.The post ALS Progression Rate Predicted by... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
    2 weeks ago
  • Ask Ben - Communicating By Phone


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    One Year Anniversary Column I have ALS. I am still able to get around fairly well, however, my speech has become increasingly difficult to understand, especially for those unfamiliar with me. I have good hand function, though texting with small buttons on a cell phone is not consistent and writing will obviously ...
    2 weeks ago
  • J.McLaughlin Shopping Event to Support The ALS Association New York Chapter


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    Join The ALS Association Greater New York Chapter and J.McLaughlin at their 1311 Madison Avenue store (b/w East 92nd & 93rd Streets) from 6pm to 8pm, on Thursday, May 16th. Enjoy wine & cheese at this in-store event while you shop for classic, American-made, men’s and women’s clothing and accessories. ...
    2 weeks ago
  • Mothers Day Tribute - Go Team!


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    Throughout ALS Awareness Month The Greater New York Chapter works to raise awareness for the disease, and highlight personal stories of those impacted by ALS. Also, as is tradition, the second Sunday of May marks Mothers Day. This is a story of a mother living with ALS and how it has touched the lives of her three ...
    2 weeks ago
  • Station Eats Gives Back w/ Their Dog of the Month


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    Cinco de Mayo doesn’t have to end, especially not at Station Eats.  Starting today until the middle of June, they’ll be featuring their Taco Dog as the Dog of the Month.  Pick your dog (grass fed beef, chicken, or veggie), then they’ll add on tomato salsa, lettuce, shredded cheddar, sour cream, and wrap it up ...
    2 weeks ago
  • Writing on people with ALS - by Jeff Pearlman & Pete Thamel


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    I last Wednesday coincidentally came across two pieces of writing about people afflicted with ALS (Lou Gehrigs Disease). Each work was really well done and showed both the devastating effects of the disease and the support received by each person featured in the respective pieces. For the Sports Illustrated ...
    2 weeks ago
  • Primavera als Bars 2013: Big Summer + Les Sueques


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    As it happened last year, the Primavera Sound Festival warms-up the city with a series of local concerts in pubs and unusual places before the big event takes place. Heres a very quick chronicle of yesterdays double gig, courtesy of our beloved friends from El Genio Equivocado , with two exciting bands ...
    2 weeks ago
  • The 2013 Young Professional Group NYC Walk Team


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    The ALS Association Greater New York Chapter is proud to have the support and passion of the Young Professional Group (YPG). This group is made up of young professionals, in their 20s and 30s, who have a personal connection with ALS. They host multiple events throughout the year and are dedicated to raising funds and ...
    2 weeks ago
  • ALS Awareness All Year Round


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    May is ALS Awareness month! Your gift helps us provide vital services to our PALS and caregivers. Your impact can go well beyond May though, and you can commit to donating to the ALS Association Greater New York Chapter each month of the year. Please consider donating monthly to ensure we can continue to work to ...
    2 weeks ago
  • Mothers Day ALS Tribute - Its Complicated to Have a Mom With ALS


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    Throughout ALS Awareness Month The Greater New York Chapter works to raise awareness for the disease, and highlight personal stories of those impacted by ALS. Also, as is tradition, the second Sunday of May marks Mothers Day. This story from the perspective of an 11-year old boy whose mother has been living with ALS ...
    2 weeks ago
  • Tell Your Story During ALS Awareness Month


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    May is ALS Awareness Month and there is no better tool for awareness than telling your ALS story. Take some time out of your day and give voice to that story. Most people know who Lou Gehrig was, but they should also know about the life of your dad, your mom, your sister, your brother, your aunt, uncle or cousin, your ...
    2 weeks ago
  • May is ALS Awareness Month - Join Us For These Events


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    Throughout the month of May we commemorate ALS Awareness Month. This month will be full of events, media, and a number of other awareness raising activities to bring attention to this disease that continues to devastatingly impact all of our lives. To kick Awareness Month into high gear, the Walk to Defeat ALS season ...
    2 weeks ago

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