cfs

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Latest blogosphere posts tagged “cfs”

 

• Poem #38

  
  Knit*Six — Authority: 139
  M.E. #1 Severe, complex, Multi-systemic, persistent. ...disabling permanent exhaustion muscle and joint pain nausea cognitive dysfunction flu-like sore throat fever swollen glands body aches depression inability to get restorative sleep changes in vision headaches, migraines strain on family and social ...
  1 week ago

• The Husband

  
  Cakes, Kids and Other Ramblings — Authority: 131
  Have I mentioned the husbands away? We are on week 3 of a 4 week stint away. Normally in the evening I blog while he tidies up or makes dinner or if Ive managed to do all of that in the day he watches TV while I blog. But keeping up with blogging has been exhausting when Im the only one doing anything in the ...
  1 week ago

• Professor Simon Wessely: the primary symptom of ME is post-exertional muscle fatigability not fatigue

  
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    Malcolm Hooper and Margaret Williams 5th May 2013: Sensationalism   versus   Science? Malcolm Hooper and Margaret Williams       5 th   May 2013 The long-promised article by Michael Hanlon on the “war” surrounding the neuroimmune disorder myalgic encephalomyelitis ...
  1 week ago

• ~*Please Support the Big Shave!!*~

  
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  Hi everyone, I wanted to let you all know about a charity event Im taking part in during M.E. awareness week this month. On the week of the 12-18th May, several people with ME, myself included, are shaving our heads. Were doing it to raise funds for two ME charities, my personal favourites: The 25% Group , and ...
  1 week ago

• Chronic Fatigue Syndrome: Did You Know May 12th is Our Day?

  
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  May 12, 2013 is International ME/CFS and FM Awareness Day. ME is the acronym for myalgic encephalomyelitis. CFS stands for chronic fatigue syndrome. FM is the short form for fibromyalgia. In researching online for this article, I was disappointed by what I found ... or didnt find. I shouldnt have been surprised, I ...
  1 week ago

• Against the “who sinned” approach to ME/cfs and fibromyalgia.(or any disease for that matter)

  
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  I heard a doctor of some de scription on the radio say that the reason so many people have diseases like Fibromyalgia and ME/cfs is because we are angry and unforgiving people. He didn’t back his extraordinary claim with any research, but he put it out there as if it went without saying. When asked if something ...
  2 weeks ago

• My first week of liberty…

  
  Ron's Rants... — Authority: 133
  I’ve been out of hospital a week now (feels like much longer), and all things considered, I think I’m doing pretty well in such a short period. Still profoundly weak, and very bad on my feet, which is hardly surprising but, more worryingly, prone to falling asleep in the evening and missing vital meds (I have ...
  2 weeks ago

• Bungee Jumping Off the Friendship Cliff

  
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  Tonight, while looking for something on Facebook, the search ironically brought up my ex best friend.  To know what an unprovoked emotional attack this was by FB you need to know she & I were never FB friends & share no friends in common.  So like I said, very uncool Facebook! Suddenly there she ...
  2 weeks ago

• Catching up on Aprils pinterest project

  
  Cakes, Kids and Other Ramblings — Authority: 131
  As April comes to a close its time to catch up with my Pinterest project . Last month I decided to help make my house a home by adding some art work to the walls. Id found a plaque that said Please excuse the mess, we live here The chronic fatigue has been hard going this month, so I needed a fairly simple way ...
  2 weeks ago

• ME/CFS Researchers Go From B-Cell Depletion Therapy to Enbrel

  
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  IMG_1855 © by kibbles_bits Fluge and Mella of the Rituximab clinical trials are now recruiting for a trial on Enbrel (Etanercept), a TNF-alpha inhibitor, for ME/CFS patients that didn’t respond to b-cell depletion therapy:  http://clinicaltrials.gov/show/NCT01730495 In the big picture, I like where Fluge and ...
  2 weeks ago

• My Handsfree Samsung Tablet Lifesaver

  
  The ME/CFS Ghost — Authority: 110
  Recently my partner got a Samsung Galaxy Note 10.1 and while I was interested in his new toy, I didnt actually think I would personally get any use out of it.  How wrong I was!  For starters it is easier and lighter to use when I am lying down, as I found out while I was horizontal with my latest ear infection. ...
  3 weeks ago

• Memoir series #3: How a Commitment to Writing My Memoir Led to a Miracle of Healing

  
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  by Alissa Lukara Tree of Life (c) 2013 Suzanna Solomon When I said yes for real to writing my memoir, a miracle happened. In the spring of 1998, after 12 years of dealing with Chronic Fatigue Syndrome (CFS), I had gotten worse. Much worse.  In addition to debilitating fatigue and memory loss, I could not write, ...
  3 weeks ago

• Unisys Computer Operator – CFS at Chenega (Albuquerque, NM)

  
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  … View post:   Unisys Computer Operator – CFS at Chenega (Albuquerque, NM)
  3 weeks ago

• The Times April 23, 2013: Scientists may have solved mystery of ME

  
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  Source: Ed Gallois Hannah Devlin Science Editor Last updated at 12:01AM, April 23 2013 Scientists have found compelling new evidence for an underlying biological cause for the constant fatigue suffered by ME patients. The study revealed abnormalities in the muscle cells people suffering from ME which are likely to ...
  3 weeks ago

• Explaing an absence

  
  Cakes, Kids and Other Ramblings — Authority: 131
  Ive been trying to work out how to explain my absence from blogging these past 2 weeks, Ive thought about ignoring it, jumping back in and pretending Ive never been away. Maybe using the CFS\ as an excuse, I havent been blogging as Ive been too exhausted, a half truth. Ive thought about tackling it with humour, ...
  3 weeks ago

• THANK YOU!!

  
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  This weekend was a huge success! There were 3,946 free downloads of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition , bringing the total number of free book downloads to 13,613! There really are no words to describe how satisfying it is to be able to give away all these books. It is a great privilege to ...
  3 weeks ago

• My nightly regine

  
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  Just tires me out looking at them all. 2 large glasses of water to get them down.  Ill list what they are and for what tomorrow, to sleepy now.  Will start making regular posts again, had a bad few months. Hi to all, gentle hugs.
  3 weeks ago

• I wish this was a joke.

  
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  [IMG: http://www.fengtastic.com/wp-content/uploads/2013/04/getting-up-is-hard-b-w-1.jpg]
  3 weeks ago

• Fixing Treg / TH17 Balance: The Key To Fixing Autoimmunity?

  
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  Treg / TH17: The New TH1 / TH2 Imbalance? balanced rocks © by Marie Loughin For years we’ve been hearing that TH1/TH2 balance is a big key (if not the  key) to disorders such as lyme disease, ME/CFS, fibromyalgia.  But treatments aimed at restoring TH1/TH2 balance have largely produced mixed results.   ...
  4 weeks ago

• Me/cfs on The Lens radio

  
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  David Singer has four short but packed episodes for you to listen to on the scandal of ME/Cfs treatment from the FDA and CDC.  If you have ME or know and love someone who has it – take a few minutes to listen. Don’t know if he’ll add more later.
  4 weeks ago

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