congenital heart disease

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Latest blogosphere posts tagged “congenital heart disease”

  • Seminole wind!


    Adventures of a Funky Heart!Authority Authority: 129
    So blow, blow Seminole wind, Blow like you’re never gonna blow again. Take me down to the Big Bend To meet some new Heart Friends. That’s where I’m headed – I’m going to be a part of Broken Hearts of the Big Bend ’s Regional Forum on Congenital Heart Defects! It is going to be held in Tallahassee, ...
    1 day ago
  • Put your Hammer Down


    Adventures of a Funky Heart!Authority Authority: 129
    “Are you going to take this on, Doctor?” – Dr. Helen Taussig (Mary Stuart Masterson) Something the Lord Made There’s something that you want to do that is… unusual. Don’t think that there isn’t; we all have that crazy idea every now and again. So what is it? If it’s moral, legal, ethical, and ...
    3 days ago
  • Fight Harder


    Adventures of a Funky Heart!Authority Authority: 129
    The CHD Blog Carnival planned for November 30 has been canceled – there were only three submissions. And  I sent at least 15 personal e-mails to various CHDers and/or their parents, inviting them to participate. If you want to beat Congenital Heart Defects, you’ve got to put some major research money into the ...
    4 days ago
  • Which HLHS surgery works better?


    Adventures of a Funky Heart!Authority Authority: 129
    Update: My friend is out of surgery and doing well! The three operation Norwood Procedure was developed in the 1980’s as an answer to Hypoplastic Left Heart Syndrome (HLHS) . Since infant heart transplant was developed at about the same time, HLHS was 100% fatal before the invention of the Norwood. But the ...
    1 week ago
  • The Talk


    Adventures of a Funky Heart!Authority Authority: 129
    My friend (see the post “Won’t back down” ) has arrived at the Mayo Clinic and her surgery is scheduled for November 18. I’m sure she and her husband have had THE TALK. Anytime you face any type of surgery you need to have The Talk. This is supposed to be pretty routine, the proverbial Walk in the Park, but ...
    1 week ago
  • Mechanical Man


    Adventures of a Funky Heart!Authority Authority: 129
    Frank had a problem . Frank had a stroke, and then the doctors diagnosed him with Dilated Cardiomyopathy . That is not a Good Thing to have, as the heart muscle has become enlarged and weakened. Frank was in heart failure, and at the moment, he was not long for this world. So doctors at the Texas Children’s ...
    2 weeks ago
  • You need a buddy!


    Adventures of a Funky Heart!Authority Authority: 129
    Here’s a good post by The Happy Hospitalist about the mental checklist a doctor goes through whenever a patient is examined. In this case, however, the doctor misread an important sign and decided to send the child home.  Happy describes what happened next: Several hours later the child was complaining of a ...
    2 weeks ago
  • One Short Story


    Adventures of a Funky Heart!Authority Authority: 129
    As I have mentioned before, I worked at an agricultural museum for ten years. We were a small operation – so small, almost every task had to be shared. I’ve set up exhibits, taken down exhibits, repaired exhibits, run the Admissions Desk, worked in the Museum Store, led all of our educational programs, given ...
    2 weeks ago
  • Heart Repair of the Future


    Adventures of a Funky Heart!Authority Authority: 129
    Here are two articles you need to see – one is from August, about literally “building” a tooth from stem cells , and one from just a few days ago about The Stanford University School of Medicine and the Gladstone Institute of Cardiovascular Disease working together to use stem cells to repair damaged heart ...
    2 weeks ago
  • We Missed It!


    Adventures of a Funky Heart!Authority Authority: 129
    Golly darn gee whiz! We missed it! The Funky Heart missed out on all the festivities associated with World Heart Day , which was September 27, 2009! What was I doing on September 27th? Ha’ mercy, I can’t remember… were we supposed to exchange gifts? What’s that? Sorry folks, I hate to get you all excited, ...
    3 weeks ago
  • Your Contributions Needed!


    Adventures of a Funky Heart!Authority Authority: 129
    It’s time for another CHD Blog Carnival! For those of you who may not know what a blog carnival is, it is like a magazine: different articles are provided by various writers, but all of them focus on the same idea or subject. The name come from the very first collection of like minded blogger links: it was hosted by ...
    3 weeks ago
  • Old Friends


    Adventures of a Funky Heart!Authority Authority: 129
    Old friend, here we are; after all the years and tears and all that we’ve been through… Bette Midler, Every Road Leads Back to You Every person in this video is an adult living with a Congenital Heart Defect.
    3 weeks ago
  • Mark and the Cardiac Kids!


    Adventures of a Funky Heart!Authority Authority: 129
    “How long has it been since you posted those cool videos?” a friend asked me. “You ought to post them again. When you showed them the first time there were about five people reading Funky Heart . You’ve got lots of new readers since then.” She could be right… I can’t recall when I posted them. And ...
    3 weeks ago
  • Major Types Of Degenerative Heart Disease


    Health and MedicAuthority Authority: 147
    As you may know, heart disease comes in a number of types. All types are serious, degenerative conditions that can cause sudden death. Given this fact, degenerativeheart disease is no doubt a health problem that needs to be considered and solved. However, before one can solve degenerative heart disease, it is ...
    4 weeks ago
  • AVOID this Vegetable Garden!


    Adventures of a Funky Heart!Authority Authority: 129
    I’ve written before how CHDers need to avoid Endocarditis if at all possible. Endocarditis is caused by a bacterial infection in the bloodstream, and it happens a lot more often than you think it does. If you are healthy, your immune systems can usually smother the infection pretty quickly and you may not even feel ...
    4 weeks ago
  • UPDATE


    Adventures of a Funky Heart!Authority Authority: 129
    Chloe got her chest tubes out and is progressing very nicely; there is a rumor running around that she might get to come home tomorrow! There are also photos of her walking down the hall, using her breathing tube, and cuddled in a purple blanket, so head over to her website . Be sure to leave her a message wishing ...
    4 weeks ago
  • BATTLE WOUNDS (NSFW)


    Adventures of a Funky Heart!Authority Authority: 129
    “Then will he strip his sleeve and show his scars, And say`These wounds I had on Crispian’s Day.’ “ - Henry V , William Shakespeare
    5 weeks ago

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