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Posts tagged fightsma (14)

  1.  Preview of Spinal Muscular Atrophy (SMA) Blog by Fight SMA

    Fight SMA Launches The Thumb Drive

    http://www.fightsma.org/blog · Authority: 3

    This week, Fight SMA sent packets to 30 medical supply companies across the Central Virginia area.  The effort, called “The Thumb Drive”,

    7 days ago
  2.  Preview of Spinal Muscular Atrophy (SMA) Blog by Fight SMA

    Tenth Year of Joshua’s Buddies Annual 5K

    http://www.fightsma.org/blog · Authority: 3

    On June 20th, Joshua’s Buddies , FightSMA’s chapter in Troy, Michigan, held its 10th Annual 5K Run/Walk/Roll to raise funds for Spinal

    15 days ago
  3.  Preview of Spinal Muscular Atrophy (SMA) Blog by Fight SMA

    New Jersey Duck Race A Success

    http://www.fightsma.org/blog · Authority: 3

    Patrick’s Buddies’ 3rd Annual Rubber Duck Race was a tremendous success! Held Sunday, June 7, 2009 at Mindowaskin Park in Westfield, NJ, the

    20 days ago
  4.  Preview of Spinal Muscular Atrophy (SMA) Blog by Fight SMA

    Fighting SMA in Washington - June Update

    http://www.fightsma.org/blog · Authority: 3

    Grassroots efforts and work on Capitol Hill is fully underway to support the SMA Treatment Acceleration Act in the 111th Congress.

    21 days ago
  5.  Preview of Jolly Mom

    A Mother Needs Our Help! Together We Can Make a Difference!

    http://www.jollymom.com · Authority: 223

    The other night, I was contacted by a mother named Victoria who desperately needs our help. Her beautiful 16-month old baby girl, Gwendolyn

    146 days ago
  6.  Preview of Spinal Muscular Atrophy | Fight SMA

    Fight SMA Annual Conference 2009

    http://www.fightsma.org · Authority: 16

    Spinal muscular atrophy / Fight SMA Annual Conference 2009

    208 days ago
  7.  Preview of Spinal Muscular Atrophy (SMA) Blog by Fight SMA

    Spinal Muscular Atrophy Treatment Acceleration Act Update

    http://www.fightsma.org/blog · Authority: 3

    Greetings SMA families, researchers and friends: We would like to extend our deepest thanks for your dedication and all you have done to

    286 days ago
  8.  Preview of Spinal Muscular Atrophy (SMA) Blog by Fight SMA

    Martha Slay: Extraordinary Woman

    http://www.fightsma.org/blog · Authority: 3

    Our very own Martha Slay was given a very nice honor a couple of months back, and we were remiss in posting it here as a way of congratulating her!

    286 days ago

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