special needs parenting

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Latest blogosphere posts tagged “special needs parenting”

 

• Parents Should Be Able To Parent, Not Give Up Parental Responsibility To Get Their Kids Services

  
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  Pretty much everyone knows I adopted two older children with special needs almost 2 years ago. Some of those special needs were known, some weren’t . Some we’ve been able to get some help with, some we are waiting for services. If I was fostering my children, I’d have about $5500K per month tax-free income ...
  6 days ago

• On adaptive trikes and intense therapies.

  
  — Authority:
  Parker’s AmTryke adaptive trike arrived on Monday.  Thrilled beyond belief pretty much describes how we’re feeling over here.  Reed hasn’t had time to set it up yet because I’ve spent the last couple of days doing fun things like colonoscopies.  Summertime at the Hodson house, always full of exciting ...
  1 week ago

• The girl I used to be.

  
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  For Christmas my Mom gave me a beautiful, leather Fossil purse.  It was an incredible color; somewhere between magenta and the perfect pink.  I like my purses colorful and exciting.  Dumb as it sounds it reminded me of the girl I used to be. I’m not much of a shoe person.  Nope.  My love has always been along ...
  1 week ago

• What Community Looks Like And Why I’m No Supermom

  
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  Lately I’ve been speaking more and more about some of the challenges navigating life has when you have adopted children with special needs, particularly related to mental health . My children bring me and everyone in our lives great joy, daily laughter and fun, but neither I nor any medical team in the world ...
  1 week ago

• Fundraising and my medically fragile child with special needs

  
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  I know I’ve told this story before.  But I’m going to tell it again.  It helps to give a bit of insight into what it is like to raise a medically fragile child with special needs. When Parker was being life flighted up to PCMC the first time, Reed and I felt secure knowing that even though Parker had a few ...
  2 weeks ago

• Don’t Let Comparisons Steal Your Joy

  
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  Sometimes I feel like I’m being pruned. Really pruned. By God, my children and my own self. And sometimes I have no choice but to listen. It hits me like a ton of bricks: let go and evolve. Sometimes this quote starts me off “Do the best you can in the place you are and be kind” and then I begin to question what ...
  2 weeks ago

• Socializing Support for Special Needs Parents Series

  
  — Authority:
  Katrina Moody Social Media Offers Unique Support for us Parents of Awesomeness I’ve written before about how amazing the support for special needs parents is on Twitter , but I’ve noticed that support is becoming more socialized than ever before. Personally, I focus on Twitter and Facebook, because try as I ...
  3 weeks ago

• Tutors and children with special educational needs

  
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  Of course it would be ideal if your special needs child got all the teaching they needed at school, but it’s not always the case. Even if your child gets plenty of support and can manage to stay afloat in mainstream school, they might need a little extra help. On the face of things, it may even look as if the ...
  3 weeks ago

• Grocery Challenge

  
  — Authority:
  Rigel leaves to go into the MTC on August 28th.  Washington, Seattle will be where he will serve.  I’m actually gonna miss this kid.  Because families pay about $400.00 a month for what their Missionaries need while in the field, I’ve got to whittle our grocery budget down  about $150.oo a month. This is a ...
  3 weeks ago

• The worth of my son with special needs.

  
  — Authority:
  When Parker was just a baby, we took him to an Endocrinologist due to his growth issues.  She looked over Parker’s records and then looked at me.  As she stared me straight in the eye she tole me that Parker was a kid not only with severe pulmonary hypertension, but also a kid with Down syndrome; and what would ...
  4 weeks ago

• Sleep, I remember that.

  
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  One of the most challenging aspects of parenting is lack of sleep. Those seemingly endless sleepless nights take a toll on our energy, our drive and clear-headedness. It can be pretty hard to think clearly and take a proportionate, balanced approach to our waking days, least of all those days full of challenge, when ...
  4 weeks ago

• Hospital Parking Fees: An Issue Of Health Inequity

  
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  As is well-documented in this space , I adopted two children with special needs. Both are followed by 2+ departments at local hospitals and adding in physiotherapy and occupational therapy, I would say that on average, we have five appointments a month year round. This does not include speech therapy which at some ...
  4 weeks ago

• One income living with a medically fragile child with special needs.

  
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  I’ve always been a stay at home Mom who is well versed in one income living.   There have been times when I’ve worked at home to bring in extra money.  With Parker’s intense needs, trying to work while keeping him alive just isn’t in the plan.  Add in the homeschooling and therapies and you’ve got a full ...
  4 weeks ago

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