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1 day agoSometimes life deals you an unbearable hand. This is the case for Jennifer Hawn. When she gave birth to a sweet little boy on January 27th
1 day agoLast Thursday I met the sweetest little guy in the world. His name is Ryan. I am lucky to have met him. Ryan has Spinal Muscular Atophy
1 day agoIt's a question I struggle with more often than not. How do I encourage my child's dreams while not losing sight of reality? My kid is bright.
6 days agoLucy's story about Jacquie and her mom's Plan B certainly hits home - my home.There was a time when I had grand plans for my life.
8 days agoSMA Education Day: Clinical Updates for Parents of Children with SMA The University of Wisconsin Pediatric Pulmonary Center is sponsoring
9 days agoGenetic testing can be an incredible tool, but it can be difficult to understand how it works and what to expect. We’re honored to have as
9 days agoThis week, Fight SMA sent packets to 30 medical supply companies across the Central Virginia area. The effort, called “The Thumb Drive”,
15 days ago„ Mamă, nu te mai zbate… Că noi suntem prea săraci pentru aşa probleme mari. Şi când nu voi mai putea să merg, voi găsi eu o modalitate ca să
17 days agoOn June 20th, Joshua’s Buddies , FightSMA’s chapter in Troy, Michigan, held its 10th Annual 5K Run/Walk/Roll to raise funds for Spinal
22 days agoPatrick’s Buddies’ 3rd Annual Rubber Duck Race was a tremendous success! Held Sunday, June 7, 2009 at Mindowaskin Park in Westfield, NJ, the
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