Feature: Mind, Body, Soul

The Fear of Alzheimer's

Author: Holly Massie
Published: October 20, 2011 at 10:25 pm
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She has Alzheimer's. Your mother, or your sister. Perhaps your grandmother or — your loved one has Alzheimer's.  Perhaps she's your only remaining family.

You reel with the news — news you refuse to believe, but is there in front of you in her distorted clock-face drawing. You inherit all her cares and worries along with the shared eye colour and your loved one becomes your new-born child.

In the middle of the night... in the back of your mind — it nags you at the worst times.  You forget. You can't think of a word. You lock the keys in the car and — while waiting for freedom in the guise of a bent coat hanger — you have 45 minutes to an hour to think. Am I going to get Alzheimer's? Do I already have Alzheimer's?  It's early-onset. My loved ones will be gone, and I'll be left...  in a long-term care facility. Like her. 

And then, the guilt jumps all over you. Like an unwelcome puppy.  How can I think about myself at a  time like this? I have to think about her.  I have to help her. I have to help her. 

When you are shocked and disheartened by the diagnosis of Alzheimer's, you are overwhelmed with feelings of impending loss — piggybacked with a huge burden of responsibility. You need to know so much information... to find out so much — just to be able to cope. Just to be able to deal with the nightmare. Just to help your loved one. 

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Article Author: Holly Massie

I have lived long enough to know I know nothing and have far too much to say about that. Like my father, my life is fodder for my humour. Like my mother, my life is lived for others. Thus, I want to make fun of the stupidity of strangers -- but the guilt! …

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